Suffer from the intersection of benzene and the intersection of acetonuria and disease spend 320 000 at least The citizens in Xi'an appeal for the medical insurance of receiving him

Suffer from the intersection of benzene and the intersection of acetonuria and disease spend 320,000 at least The citizens in Xi'an appeal for the medical insurance of receiving him
Suffer from the intersection of benzene and the intersection of acetonuria and disease spend 320,000 at least The citizens in Xi'an appeal for the medical insurance of receiving him
Chinese businessman's network - news of China's Business (reporter Li Lin) Catch the next PKU (the English abbreviation of benzene acetonuria disease) unfortunately The infant, the annual therapeutic fee needs 20,000 yuan, generally need treating to 16 years old, costs 320,000 yuan at least, even in the city, which family bear have? Yesterday, an infant in Xi'an parents sent out the appeal, hoped the related departments can include this disease in the medical insurance the category of submitting an expense account as soon as possible. Live Ms. Wang of the east suburb of Xi'an has a lovely daughter - -Sweet. The sweet skin is very delicate, big eyes, yellow hair, look like a beautiful foreign girl, however, she is an unfortunate PKU infant. Benzene acetonuria disease is because of the shortage of third amino acid hydroxy enzyme internal benzene, so that third amino acid of benzene can't be transformed, accumulate in the body, thus influence intelligence development, it is retarded to cause finally. Make a definite diagnosis of beginning from more than a year old, mean sweet wanting from then on and normal both refined and coarse grains insulation, can only eat the purpose-built food, the consequence that slightly crosses the border is - -The irreversible brain nervous system is damaged. Will it be afternoon yesterday, Ms. Wang say purpose-built rice and flour for one month, nutritive food charge 1200 yuan must get off, in addition also need to draw blood and checking, taking medicine every month, get the therapeutic fee of 18000 yuan at least in one year. Sometimes can not afford the food, eat the potato containing starch alone for children. Ms. Wang has set up one " Shaanxi PKU group " ,Have more than 20 PKU parents to participate in, there is not medical insurance that submit an expense account, each family lives and gets the poverty but sad. Unless hope they, can last medical insurance and last range disease this government,to testing, expenses for medicine,etc. clinic be lasted proportions certain to be spent. "The country issued stipulating, each maternity hospital should tell when the child was just born that needed to be a neonate to sift and check in 2002, in order to find PKU early, ensure parents' right of being in know. " Ms. Wang says, but sweet when a tertiary hospital in the suburb of west Annan was born in in February of 2005, no one tells her this. Until a sweet more than a year old, because cold coughs, when the hospital sees the doctor to do urine examination, have just made a definite diagnosis of PKU. The strong honour of the hereditary chief of the office of healthcare hospital for women children of province introduces, our province is the hotspot of benzene acetonuria disease, the morbidity is up to 1/7000, is higher than average national level by 1/10000. This disease belongs to a few hereditary diseases that can be treated, find that can treat in early days, so the department of public health of the province specially sends the documents and demands to do newborn child's illness well and sift checking, but the whole province sifts the checking rate it is only 1/3 at present. The strong honour says, the fee is generally forty or fifty yuan to sift checking.


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